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Joshua’s Journey

by Armando Sanchez
While working with his occupational therapist, 17-month-old Joshua Bland crawls under the table toward his mother, Mikki Bland. Joshua has an occupational therapist come to his home three times a week to help develop his motor skils.

A person must be brave in a world of giants. Surrounded by towering objects and daunting distances, Joshua explores with earnest and wonder. Fascinated by the magic of gravity and its relentless grasp on his new environment, he holds on to whatever is close in the hopes of conquering his adversary. When faced with the challenge of crossing a territory that offers nothing to grasp he looks at his fragile hands, glances over his shoulder and walks into the unknown. After three steps he realizes he may be in over his head. Descending to earth, he sees the hand of divinity reaching to save him. She catches him before he hits the hard wood floor, holds him close and says, “Good job Joshua!”

As a mother, Mikki Bland couldn’t be more proud of her son’s attempts, but three steps is the farthest that the 17-month-old has ever gone. Joshua was born with Galactosemia Duarte, a condition that leaves him with only one third of the enzymes needed to break down glucose, and Pyloric Stenosis, an enlarged stomach muscle. As if these two weren’t enough, he also developed a severe case of acid reflux which confined him to a special high chair – even when he was sleeping – for the first nine months of his life. Luckily after he turned 1, his Galactosemia Duarte became benign, a surgery reduced his stomach muscle and his acid reflux subsided.

Now Joshua has the task of catching up to children his own age. Since he was immobile early on, he did not develop motor skills for walking and feeding himself at the same rate that other children do. He sees an occupational therapist three times a week and attends a class for developmentally delayed children at Lincoln Trail Elementary School in Elizabethtown every Friday.

Despite his setbacks, Joshua continues to look at the world around him with awe. He crawls across the rooms in his home pointing at the doors and lights as if they hold a secret he has not yet unraveled, questioning the possible and what he can learn from his brightly colored toys that scatter his world. For Mikki, seeing Joshua able to discover what so many other children his age have is all a mother could ask for.

“Him being as mobile as he is now is completely beyond my wildest dreams,”she said.

Joshua Bland feeds his mother, Mikki, a corn puff while she holds his hand. Joshua is still unable to feed himself or walk without assitance.
Mikki Bland kisses her 17-month-old son Joshua after picking him up from his babysitter. Mikki's husband, Caleb, drops Joshua off at 8 a.m. before he goes to work, and Mikki picks Joshua up.
After hearing running water, Joshua heads into the bathroom where his mom, Mikki, is preparing his nightly bath. With nothing to hold on to, Joshua crawls between the bedrooms, bathroom and living room in his home.
Joshua's mother rinses his head during his nightly bath. Before he started eating, Joshua could be given only sponge baths because his feeding tube could not be submerged.
Before going to bed, Joshua gets a dose of Zyrtec. Although he no longer has any serious medical conditions, Joshua suffers from eczema, a skin condition.
After work, Mikki plays with Joshua at his babysitter's home.
Mikki uses a child-proof barrier at the top of her basement stairs to stop Joshua from attempting to walk downstairs. But when he's at the bottom, Joshua often tries to crawl his way to the top.

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